The title says it all. The new treatment seems to be working, although we won't be sure until I have tapered down to a lower dose of prednisone, but I feel the best that I have in 7 months. My range of motion has returned, along with my energy and stamina! I am exercising and doing PT again.
I started with weekly IV immunoglobulin treatments for a month, and then my rheumatolgoist reduced the frequency to once every 2 weeks. They do take 5-6 hours, which is inconvenient, but worth it. The "liquid gold", as I call it, seems to be helping. Hopefully I will be able to reduce the frequency to once a month, and maybe even discontinue it entirely.
Thanks for your prayers, and please keep praying that as I taper the prednisone (at a rate of 1 mg every 2 weeks) I don't experience a flareup of symptoms.
For the moment, life is great. I am enjoying life and my family again.
Not Having Fun
4 weeks ago